Although I ask myself all the time "why?!" this happened to my baby girl, I truly now believe that God has a definite purpose for Mary Elizabeth and our family (exactly WHAT purpose I have no idea). I believe that we are meant to teach something to someone (maybe in our family, maybe a stranger??)...sounds pretty vague, I know...but I am positive of our mission (just hazy on the details).
Slowly, God has helped ME progress in her therapies, her weight gain, her overall quality of life (she used to have horrible tummy pain and now it is completely gone). I have prayed diligently for this progress...often impatiently. Every time I feel like I may be on the verge of a meltdown, God gives me something - a beautiful day with both of my kids (no whining) happy and laughing together or a new skill ME picked up or a super sweet Benjamin telling me he loves me the most....just enough to get me through. His grace is sufficient.
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